With Gratitude

Nov 27, 2024 | Community, Events

This reflection was written by TCF volunteer Paul Oramasionwu.

On October 29, 2025, I spent the day at TargetCancer Foundation’s Think Tank on Advancing Precision Medicine in Rare Cancers at The State Room in Boston. I was there as a volunteer, managing check-in and keeping speakers on schedule (more nerve-wracking than it sounds), and I stayed through the reception to talk with clinicians, genetic counselors, researchers, and fellow supporters.

A bit of background: I’ve been volunteering with TargetCancer Foundation since 2019, mostly behind the scenes doing IT work. I build apps and scripts for data management and automation, and I troubleshoot tech issues as events come together. I do it because rare cancers are devastating and often overlooked, and it’s meaningful to use my skills in support of this work.

This reflection was written by Kristen Palma, President of TargetCancer Foundation

The holiday season has snuck up on us again and we know well that this time of year can bring up many emotions and challenges, as well as joy and comfort in memories and traditions.

Last week, TCF concluded what has become a new November tradition – our 3rd Think Tank on Advancing Precision Medicine in Rare Cancers and Industry Roundtable meeting. After spending two days with patients, advocates, clinicians, scientists, industry and government agencies who are all working tirelessly for patients and families facing rare cancers, we are feeling particularly grateful this year.

It is not always easy to feel gratitude when facing the unique challenges that are presented by rare cancers. But that is exactly what we felt last week when more than 80 individuals traveled from Washington state, California, Tennessee, New Mexico, Nevada, Toronto, New York, Washington DC, and more to come together to present their unique perspectives and to listen, learn, and collaborate with each other. The Think Tank featured a Patient Keynote speaker, multiple scientific panels, a patient case presentation by TRACK’s Molecular Tumor Board, and a discussion with patient advocates about their work to drive rare cancer research forward.

Whether a patient was presenting their individual experience, a family member was advocating for change, or a clinician or scientist was presenting their work, every perspective mattered. The possibility for change and progress, and the excitement and dedication in the room was so evident. We all left with a sense of urgency for the work ahead as we know that patients with rare cancers need help now.

My wish is always that we did not have to gather at all- that cancer was not the painful reality connecting everyone in the room. But seeing the passion, brilliance, knowledge and devotion gathered together gives me so much hope for patients today and in the future. I know I sleep better at night knowing how hard people are working for patients and families and for that, I am truly grateful.