This reflection was written by TCF volunteer Paul Oramasionwu.
On October 29, 2025, I spent the day at TargetCancer Foundation’s Think Tank on Advancing Precision Medicine in Rare Cancers at The State Room in Boston. I was there as a volunteer, managing check-in and keeping speakers on schedule (more nerve-wracking than it sounds), and I stayed through the reception to talk with clinicians, genetic counselors, researchers, and fellow supporters.
A bit of background: I’ve been volunteering with TargetCancer Foundation since 2019, mostly behind the scenes doing IT work. I build apps and scripts for data management and automation, and I troubleshoot tech issues as events come together. I do it because rare cancers are devastating and often overlooked, and it’s meaningful to use my skills in support of this work.
“When the late Paul Poth was diagnosed with a form of cancer so rare there was no treatment, he helped to launch a highly promising area of cancer research that is giving new hope to patients.”
A great piece from a Massachusetts General Hospital newsletter on TargetCancer Foundation’s work with MGH that recently led to a new cholangiocarcinoma clinical trial.
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