The TargetCancer Foundation Advocacy Council

Aug 17, 2016 | News

This reflection was written by TCF volunteer Paul Oramasionwu.

On October 29, 2025, I spent the day at TargetCancer Foundation’s Think Tank on Advancing Precision Medicine in Rare Cancers at The State Room in Boston. I was there as a volunteer, managing check-in and keeping speakers on schedule (more nerve-wracking than it sounds), and I stayed through the reception to talk with clinicians, genetic counselors, researchers, and fellow supporters.

A bit of background: I’ve been volunteering with TargetCancer Foundation since 2019, mostly behind the scenes doing IT work. I build apps and scripts for data management and automation, and I troubleshoot tech issues as events come together. I do it because rare cancers are devastating and often overlooked, and it’s meaningful to use my skills in support of this work.

We are excited to announce the TargetCancer Foundation Advocacy Council, dedicated to empowering volunteers through increased support of TargetCancer Foundation’s mission including rare cancer awareness, rare cancer research, and patient support.

There are many ways to serve on the council. Here are just a few examples:

Help at an event or plan one of your own
Travel to a scientific conference to represent TCF
Write for the TCF Blog
Become a patient liaison
Train to become a legislative advocate
Serve on the Gala planning committee

Many thanks to Leslie Condon and Lisbeth Garassino, who will be Co-Chairing the council. After their own experiences of losing siblings to cholangiocarcinoma, Leslie and Lisbeth have energetically volunteered with TCF, and we are excited to have them leading this new council.

We are actively seeking new members, and if you are interested in joining, please contact Leslie Condon or Lisbeth Garassino.