Join the Paying With Our Lives advocacy campaign to #SaveRareCancerResearch! Learn more.×
How have federal funding cuts impacted your rare cancer experience? If you have an example of the direct impact of funding cuts on you or someone you love — whether it is the closing of a clinical trial, changes, delays, or loss of access to treatment, or anything else — please raise your voice, and use the advocacy campaign resources to share your story on your social media channels with the hashtag #SaveRareCancerResearch.
I Rise for Rare Selfie Michael

Michael Casaus
Co-Founder
cureMEC: The Myoepithelial Carcinoma Project
New Mexico

I fight for rare because my son’s life depends on it!

I Rise for Rare Selfie - Dana

Dana Deighton
Stage 4 Esophageal Cancer Survivor and Patient Advocate
Virginia

I fight for rare because no research equals no cures!

Katie Doble
Stage 4 Rare Cancer Survivor and Patient Advocate
Colorado

Suzanne Vincze
Vice President, Max Vincze Foundation
Nevada

Action Items

  • Take a #SaveRareCancerResearch selfie and post to social media
  • Make a short video about why it is critical that policymakers restore funding for rare cancer research
  • Tag @TargetCancer and use the #SaveRareCancerResearch hashtag so TCF can amplify your post

Ways to Share Your Story

I fight for rare selfie sign

Share Your #SaveRareCancerResearch Selfie!

  • Download our sign to save it to your device.
  • Print on 8.5 x 11 paper.
  • Add a handwritten note — in 15 words or less — about why it’s critical to restore funding for rare cancer research. Use a pen or marker with dark ink. (For example: “because [rare cancer type] can’t wait” or “because clinical trials are the best hope for finding new options for [rare cancer type]“, etc.)
  • Add your first name and state, if you’re comfortable sharing.
  • Take a photo of you holding the sign with your smartphone.
  • Share to Instagram, Facebook, TikTok, X, and/or LinkedIn.
  • Tag @TargetCancer and use the hashtag #SaveRareCancerResearch so we can engage with your post.

Don’t have a printer? Use our Canva template to personalize an I Fight for Rare graphic, or use one of the following predesigned graphics:

 

Video icon

Make a short video

  • Share how you or your loved ones have been — or expect to be — affected by federal funding cuts to cancer research.
  • Be specific and candid.
  • Film the video in portrait mode (not landscape).
  • Keep it short — 90 seconds or less.
  • Share to Instagram, Facebook, TikTok, YouTube, and/or X (Twitter). 
  • Tag @TargetCancer and include the hashtag #SaveRareCancerResearch so we can engage with your post.

Sample script

I’m [FIRST NAME] from [STATE] and I fight for rare because [YOUR REASON].

Everyone deserves effective treatments and a chance to live.

Save rare cancer research!

Sample Social Media Posts

Download graphics: Facebook | Instagram | Square

Sample LinkedIn Posts

LinkedIn Post #1

📣 Federal research cuts are not just numbers on a spreadsheet—they’re decisions that cost lives. Rare cancer patients are being pulled from clinical trials. Scientists are being laid off. Promising treatments are being shelved.

The Paying With Our Lives: Save Rare Cancer Research advocacy campaign is collecting 50 rare cancer stories from 50 states to show lawmakers what’s at stake.

If you’ve faced rare cancer—or stood beside someone who has—please speak out and share your story. Make sure to tag @TargetCancer Foundation so they can spread the word.

📝 Add your voice: https://targetcancer.org/saverarecancerresearch

#SaveRareCancerResearch #RareCancer #HealthPolicy #PayingWithOurLives #Patients #MedicalResearch

LinkedIn Post #2

When I was diagnosed with [RARE CANCER TYPE], I had no treatment roadmap — only hope. Hope that research would catch up with my cancer.

That hope was possible because of federally funded science, like [INSERT STUDY, TRIAL OR AREA OF RESEARCH THAT HOLDS PERSONAL RELEVANCE]. But now, deep cuts are erasing that progress.

I’m sharing my “Paying With Our Lives” story to #SaveRareCancerResearch.

If your family has faced rare cancer, speak out. Tell Congress what this really costs.

📣 Share your story: https://targetcancer.org/saverarecancerresearch

@TargetCancer Foundation #RareCancer #MedicalResearch

Sample Facebook Posts

Facebook Post

1 in 4 cancers is considered rare. Yet rare cancers receive only a fraction of federal research dollars. And now, already limited funding is being slashed. Federal budget cuts are stopping lifesaving research in its tracks, halting breakthroughs and stealing time and hope from families [like mine]. Decades of progress are at risk. And people with rare cancers are paying with their [our] lives. @TargetCancer is collecting 50 stories from 50 states to #SaveRareCancerResearch. I fight for rare because [insert your why].

Add your voice at: targetcancer.org/saverarecancerresearch #PayingWithOurLives #RareCancer

Sample Instagram Posts

Instagram Post #1 (Picture)

Graphic: Selfie holding printed sign

Caption: Massive federal budget cuts are stopping lifesaving research in its tracks — halting breakthroughs in rare cancer treatments and stealing time and hope from thousands of Americans. Decades of progress are at risk. And people with rare cancers are paying with their lives. I fight for rare because [insert the handwritten message from your selfie sign here].

📢 Join me. Share your story.
🖨️ Download the selfie sign
✍️ Write your message
📸 Take a pic + post
🏷️ Tag @TargetCancer

#SaveRareCancerResearch #PayingWithOurLives
➡️ targetcancer.org/saverarecancerresearch to learn how to help.

Instagram Post #2 (Video)

Graphic: 30-60 second vertical video sharing your story

Caption: I’m [FIRST NAME] from [STATE], and I fight for rare because [YOUR REASON].

I’m one of thousands affected by rare cancer — and by federal funding cuts that are halting research and risking lives. We can’t afford to go backwards. Everyone deserves effective treatments and a chance to live.

💬 Share your voice. Record your story.
📲 Tag @TargetCancer
Use #SaveRareCancerResearch to join this national movement.

#PayingWithOurLives #RareCancer #MedicalResearch

Sample X Posts

X (Twitter) Post #1  (Fast & direct)

The U.S. just slashed cancer research funding by more than $3 Billion. 1 in 4 cancers is rare. That’s millions of lives at risk. @TargetCancer is collecting 50 stories from 50 states to #SaveRareCancerResearch. 📝 Add yours: targetcancer.org/saverarecancerresearch #PayingWithOurLives #RareCancer

X (Twitter) Post #2 (Systems breakdown)

Cancer doesn’t care how you vote, where you live, or what you earn. It’s a fierce enemy — and science has always been our best defense. But now, Congress has slashed billions in medical research, including #rarecancer. Lives are being lost. We must #SaveRareCancerResearch before more time runs out. 🔗 targetcancer.org/saverarecancerresearch #PayingWithOurLives @targetcancer

X (Twitter) Post #3 (Awareness)

💔 Rare cancer patients are paying with their lives.

Deep federal cuts to cancer research mean fewer trials, fewer scientists, and fewer chances for survival.

@targetcancer is launching a national effort — Paying With Our Lives — to #SaveRareCancerResearch.

📣 They’re collecting 50 stories from 50 states to show lawmakers what these cuts really mean. If you or someone you love has faced a rare cancer, please speak out.

🔗 targetcancer.org/saverarecancerresearch

#PayingWithOurLives #RareCancer

X (Twitter) Post #4 (Conversation)

Cancer doesn’t care where you live or how you vote — and rare cancer research funding affects every single community.

I’m talking to my neighbors about how federal cuts are endangering lives in our own backyards.

Join the #PayingWithOurLives campaign to speak up and speak out. targetcancer.org/saverarecancerresearch

💬 Who in your community needs to know? Start the conversation.

#SaveRareCancerResearch #RareCancer #Patients #CommunityAction

X (Twitter) Post #5 (Amplifying others)

Every rare cancer story shared is another reason Congress must act.

I just read [FIRST NAME]’s story from [STATE]—and it hit hard. We need to elevate voices like theirs.

Follow, share, and tell your own story at targetcancer.org/saverarecancerresearch

#PayingWithOurLives #SaveRareCancerResearch #RareCancer

Sample YouTube and TikTok Scripts

YouTube Community + Short Video Script

Rare cancer research saved my life. Now the government is cutting it.

Since January, cancer programs have lost millions in federal funding. Clinical trials are being canceled. Scientists are being laid off. Patients are being left with no options.

@TargetCancer is collecting 50 rare cancer stories from 50 states to #SaveRareCancerResearch.

If rare cancer has touched your life, please share your story. And even if it hasn’t, consider sharing mine.

🔗 targetcancer.org/saverarecancerresearch

#PayingWithOurLives #RareCancer #MedicalResearch

 

TikTok Post Template

Format: Speak directly to camera with jump cuts or captions

Prompt Script: I’m [FIRST NAME] from [STATE] and I fight for rare because [INSERT YOUR REASON].

Massive federal budget cuts from DOGE and The Big Beautiful Bill are stopping lifesaving research in its tracks. Decades of progress are at risk. And people with rare cancers are paying with their lives. The #SaveRareCancerResearch campaign is calling on policymakers to restore federal funding for rare cancer research. Your voice matters! Speak out and share your story.

Caption: This is what it looks like when you cut rare cancer research. I’m one of 50 voices from 50 states speaking out. Be one, too.

#SaveRareCancerResearch #CancerAdvocacy #StorytellingMatters #PayingWithOurLives #RareCancer #MedicalResearch